Lee Ann Melchor
University of Central Florida
College of Education - Graduate Studies
A
Selective Review of Treatments for Children with Autism: Description
and Methodological Considerations
Recently,
the CDC announced that roughly 1 in 88 children are diagnosed with
autism with boys 5 times more likely to develop autism than girls.
These staggering numbers combined with the lack of identifiable cure
or cause of autism, leaves many parents vulnerable to miracle cures
and ineffective and unproven treatment options. Of all the treatment
options available, several programs were identified as being the most
cited and most visible autism programs available. These programs
include: UCLA’s Young Autism Project (YAP), Project TEACCH, LEAP,
ABA Therapy and the Denver Health Science Program.
While
there is no documented cure for autism, autism can be managed
effectively using a combination of behavioral, education and
biological interventions. In reviewing treatment options, autism and
school professionals should consider the following questions: (a) Are
these treatment programs effective? (b) What are the common elements
of these programs? (c) What steps need to be taken to improve
treatment outcome research for children with autism? (d) What
implications do the answers to the above 3 questions have for school
psychologists? (Gresham, 2000). Two primary distinctions are made
when evaluating a treatment option: the efficacy of the treatment or
the reduction in the autism symptoms while increasing functional
skills and effectiveness across the settings in which the treatment
options will be used.
In
1996, Bristol and his colleagues released a report to the National
Institute of Health (NIH) in which he raised issue with the methods
and the statistical data in autism interventions that must be
addressed in order to gain a better understanding of what autism
interventions work. These findings include:
- Research studies should use experimental designs and treatment comparison models.
- Use of randomly assigned children to treatment conditions.
- Treatment should be conducted across a wide variety of natural and laboratory settings in which a wide variety of behaviors and skills are assessed.
- Outside evaluators who are not vested in outcomes of research should not be used.
- Procedural integrity of the interventions should be consistently assessed.
- Longevity studies should be used to evaluate the long term effects of treatment over time.
The
Clinical Child and Pediatric Psychology / Division 12 of the American
Psychological Association (APA), formed a task force to evaluate the
efficacy and effectiveness of research on childhood five childhood
disorders, including autism. The goals of the task force include
identifying what treatments are most effective for individuals with
autism and under what circumstances.
In
evaluating several of the leading programs for children with autism,
including UCLA’s Young Autism Project (YAP), Project TEACCH, LEAP,
ABA Therapy and the Denver Health Science Program, several key flaws
were found. In the YAP program, which relies primarily on discrete
trial training, the research studies utilized to evaluate YAP’s
effectiveness, failed to randomly assign children to the research
groups. Further research studies, failed to replicate the exact
outcomes in later studies. Project TEACCH uses collaboration,
sharing of information, as well as education programs for both the
child and the parent. Project TEACCH uses a framework that combines
vocational, social skills, and living skills. Research studies have
been completed on the effectiveness of TEACCH in the classroom, but
not on the effectiveness of the interventions being used in the home
setting. LEAP program is a federally funded model that was one of
the first to utilize inclusive practices for young children with
autism and their families. LEAP emphasizes the use of a home-school
alliance to promote academic outcomes of children. There is little
data to support that LEAP has more effective outcomes than other
autism programs. ABA Therapy is considered one of the most effective
interventions for children with autism as it focuses on the role of
the child’s environment impact on the child’s behavior. This
article, however, focused on two ABA programs: Rutgers University’s
Douglas Developmental Center and Princeton’s Child Development
Institute. This article criticized that the studies conducted at
Rutgers failed to use a control group and a comparison group, thereby
nullifying the validity of the data collected. Princeton’s study
also had several flaws including failing to randomly assign children,
neglecting to use a comparison group receiving another treatment,
failing to identify the treatment program adequately and poorly
defined outcomes.
From
this article, it has become clear that the autism field is hampered
by the lack of adequately proven interventions. The lack of
documented proven interventions is centered around the lack of an
established, uniform criteria for evaluating the effectiveness of
treatment options in the field of autism. If professionals in the
field cannot agree on an established method for evaluating programs,
how can they determine the most effective intervention programs
available? Furthermore, if professionals cannot agree on the most
effective interventions available, how more confusing is it to
parents of children with autism to determine which treatment options
are most effective for their child?
In
summary, it is clear that there is a high need for a uniform set of
procedures and criteria to be established to evaluate the
effectiveness of programs. It is imperative for this to be
established for advances to be made in the autism field. This is
critical for not only protecting parents and children with autism but
the field of autism as well.
Gresham,
F. et al (2000). A Selective Review of Treatments for Children with
Autism: Description and Methodological Considerations. School
Psychology Review,
28(4), pp. 559-575.
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